Friday, April 11, 2014

15 days until The Walk to end Lupus Now!

The walk in Piedmont Park is only 15 days away! I cannot tell you how excited I am to meet with my lupus family again. If any of you are reading my blog and are looking for a way to feel empowered be at Piedmont Park on April 26th! The walk is at 5:00 P.M., but festivities start at 1:00 P.M. If you see me there, please come up and say hello. You can follow my link below to sign up, or for more information. If  you would like to donate or join my team, just search Team McKayla.

http://www.lupus.org/georgia/events/entry/2014-walk-to-end-lupus-now

Monday, March 31, 2014

Beautiful day!

Wow! Today has been beautiful. I don't know about you all, but I always breathe a sigh of relief when warmer weather hits. The colder weather seems to aggravate my joints and make them ache more. I also feel a bit more tired in the fall and winter, not to mention all the viruses that my lovely immune system can catch. I have been sick less this past winter than in more recent years. I am so thankful for that. I hope this holds true for the spring and summer. For those of you that have lupus or think you may have lupus, I am glad you read my blogs. Lupus is not a disease that you want to leave untreated as it can be fatal. There are more advances every day with the medication and research, so there is much reason to be hopeful. Feel free to email me or comment below. You all are my inspiration and part of what gives me purpose!

#LUPUS FACT If left untreated, lupus is potentially fatal. Lupus can lead to organ damage and failure. Serious conditions that can arise include kidney disease, pericarditis, pleurisy, vasculitis, pericarditis, and cancer. www.mollysfund.org

Wednesday, March 19, 2014

Newspaper Article

The Walton Tribune ran a featured article on me and my platform work today. They also gave me an editorial kudos. I am truly blessed to be able to do His will, and educate others about this disease. I believe I would not be the person I am today had I not had to battle lupus. I am a much more determined and stronger person. Some days it is not so easy to get out of bed, but you all motivate me and inspire me. I hope in some small way I can do the same for you.

-Strength does not come from physical capacity. It comes from an indomitable will. -Gandi



Wednesday, March 12, 2014

Girl Talk

Yesterday I was able to share my story with some middle school girls at Girl Talk. This is an organization that allows girls to be mentored by their older female piers. I had no idea sharing my personal history would make such a difference. I received an email from a girl who told me she has a disability. She said I had encouraged her to go for her dreams, and never give up. I know this seems like a reoccurring theme from me, but if you are going through a tough time due to life or sickness use that to encourage others. You never know who you might touch or help them see they need to press on. Here is a picture with a couple of the girls from yesterday. I plan to go back soon. I cannot wait!


Friday, March 7, 2014

Lupus Foundation of America

I am so excited to announce that I have been formerly asked to be on The Lupus Foundation of America Educational Committee. I will be responsible for coming up with ways to reach teens and young adults via social media and by other means. If any of you reading my blog have any input or ideas, please forward them to my email address below. I already have some thoughts, but welcome any others. I am your representative, and will do every thing I can to make sure there are more available resources for those who are searching for them. I will keep you all updated as my first meeting with the foundation is coming up in April. I cannot wait to get to work with this wonderful foundation!

xo.mckayy.xo@gmail.com

Thursday, February 27, 2014

I never imagined

I never imagined 7 years ago when my symptoms first began that this would turn into a huge opportunity to reach out to people. I've had the privilege to meet with my legislatures, speak on Fox 5 News Atlanta, speak at The Capitol, and other countless opportunities. Today I got to speak about how this disease affected my life in middle school on a video to 6th-8th graders. People tell me I don't look sick. They say how can anything be wrong with you? I'm here to tell you that is the main problem with lupus. A lot of times you don't look sick until you are on deaths door in the hospital. I lost friends to this disease who thought I was weird for being out of school so much. I was in the hospital with uncontrollable seizures for days in the 7th grade. There were people that would come to my house to see me hoping they would see me have a seizure. I remember one time in particular a girl who told me she hated me coming with my friends to see me. She never talked to me afterwards, so I can only surmise she came to spectate and was hoping I was going to be the show. I can only imagine with the advance of social media how much worse it is for kids today. I heard horror stories today of such extreme bullying that kids are cutting themselves because of the self hatred they feel. I have definitely found another passion.. I am called to speak to girls, especially middle school age about self esteem and bullying.

In the video I was able to share my past experiences and what has led me to where I am today. I thank God for allowing me to carry this honor of having lupus. In all honesty, it has made me a stronger and more compassionate person. If I can help one person know that things will get better, and help one girl that is being bullied know they are not alone, I am gratified. If anyone is out there that feels hopeless or needs a friend, please email me at xo.mckayy.xo@gmail.com

Never let someones perception of you become your reality.




Thursday, February 20, 2014

The past couple of days...

I have been so busy! Last night was the walk to end lupus kick off party & it was such a blast! It really got me pumped up for the walk in April! Two days ago, I had the opportunity to go to the Capitol and talk with Governor Nathan Deal and my Senator Burt Jones. I love talking with them about how much the funding has improved since last year! If everything goes as planned, we will be expecting a cure soon! Every donation counts. Thank you all for your support and I am so blessed to be doing what I love and what I am so passionate about!