Saturday, July 26, 2014

Update

I FINALLY received my grades today for my Chemistry and Chemistry lab class. I made a B in Chemistry and an A in lab! You guys have no idea how excited I am about this! There were a lot of people that did not even pass this class. I am so glad this is behind me. Now on to Anatomy. I am on my way to my dream of being a nurse.

On another note, I am leaving tomorrow for Jacksonville to compete for the title of Miss Teen International. This would mean so much to me. I would be able to spread lupus awareness and hopefully encourage people along the way. Please cover me in prayers all week. I will be interviewing with the judges on Wednesday. I have Prelims Thursday and Saturday is the finals. I hope they judges see my heart and know how much I have to offer. As always, I will keep you guys updated on here and my face book page.

Stay well!

xo.mckayy.xo@gmail.com

Saturday, July 12, 2014

Lupus

First off, let me say I am sorry it has been a while since my last blog update. As most of you know, I am taking summer classes in college and my focus has been on that. Thank the good Lord above, I will be finished Wednesday. Please pray for me as I take my exams this week. I cannot believe I will be a sophomore in college! I am pretty proud of this as I was not supposed to graduate high school until this past May. If all goes well, I will have my RN license within 3 more years, and fulfill my dream of being a nurse.

I had some blood work repeated because my liver levels and vitamin K levels came back weird. I am happy to say that everything is normal again. Praise the Lord! For whatever reason, lupus likes to mess around with my liver levels. I can always tell when this happens because I feel nauseous. On top of that, my insurance company has decided they do not want to pay for one of the medications I need. It will be an extra $200 expense for my family a month. As most of you know that have lupus, we can deal with this quite frequently. My doctor is appealing, so hopefully the insurance company will cave in. I feel so much better since I started taking this medication. It is not an option for me to discontinue it.

I met with The Lupus Foundation of America's Educational Board again recently. All I can tell you as of now is that we are really trying to focus on children and teens. We want people to be aware of signs and symptoms of lupus so children and teens do not have to suffer as I did. I was so sick from the age of 10 to 14 not knowing if I would live. It is my hope to keep others from going through that. As part of the educational board, we intend to have presentations for elementary schools and their parents. We are also brainstorming ways to get more resources out to teens to educated them about lupus as well as make sure resources are available to to them on a wider basis.

As always, if any of you need anything or have feed back you would like for me to discuss with the foundation, please email me or comment on here. I will be posting another blog next week updating you all about my exams. It will also be the week before I compete for Teen International in Jacksonville. Please pray for me and the judges that they will see who I am and what I am trying to accomplish. If I had a national platform to promote lupus awareness, it would be beyond exciting! Stay well and no matter how hard it is, be positive. Turn a negative into a positive for someone else.

-Strength doesn't come from physical capacity. It comes from an indomitable will. -Gandhi

Saturday, June 21, 2014

College and Blood work

Happy Saturday everyone! I hope your week has been great! Last week I was stressing over my chemistry class. I had a test Monday, and I was so worried I was going to fail. Well, guess who made the highest grade on the chemistry test? That would me ME!! Can you tell how excited I am? I am almost halfway through this class and very blessed. I prayed before the test and can attest that prayer does work.

I had an appointment with my neurologist and they took some blood work due to me having migraines again. I am one of the lucky few that lupus affects my brain and can cause seizures. I do not have the falling down type of seizures. I am awake and aware when I have them. I actually went over a year without one, and had to be put back on the seizure medication last year due to abnormal brain activity on my EEG. The neurologist went ahead and increased my medication a couple of weeks ago due to migraines, and I feel so much better. While I was there they ran blood work on me as well. For some reason my vitamin K is extremely high, and once agan my liver levels are elevated. Since I do not drink alcohol at all, this should not happen. I went to my rheumatologist yesterday and she has repeated the blood work. If it comes back the same or worse, we will have to do more testing to figure out what is going on. As usual, I am not letting this get me down or hold me back. This only makes me stronger and more determined.  I hope reading my blog encourages you all to do the same.

xo.mckayy.xo@gmail.com

Saturday, June 14, 2014

College

Good afternoon everyone! Thank you guys so much for reading my blog and for all the feedback you send me. It keeps me going. As most of you know, I started college a year early. I decided to take summer classes as well so that I may finish up my core classes by this time next year and apply to nursing school. If I stay on track, I could be a registered nurse by the time I am 20! I have to say this chemistry class I am taking is a new level to me. Since it is a summer class, it is accelerated. We learn about a chapter a day! Can you believe I only take 12 classes total, and then I am done with chemistry? Even though it is hard, I plan to finish strong and keep my GPA high enough to still receive the HOPE scholarship. I could really use some prayers as this is a difficult take to do. As always, thank you for reading my blog. I know this was a non lupus related post, but some times I like to let you guys know what is going on with me that is non lupus related. Feel free to contact me if you need anything.


xo.mckayy.xo@gmail.com

Monday, June 2, 2014

Sips for Sjogren's

Yesterday I had the privilege of volunteering at Sips for Sjogren's. This was an event put on by my mentor and coach Kim Vaughn. She deals with Sjogren's Syndrome on a daily basis. I feel as though we have an understanding with one another as lupus and Sjogren's are similar in many ways. Also, many people with lupus have developed Sjogren's as a secondary disease.

Sjogren's syndrome is an autoimmune disorder in which the glands that produce tears and saliva are destroyed. This causes dry mouth and dry eyes. The condition may affect other parts of the body, including the kidneys and lungs. Sjogren's can also affect the joints, and also may cause fatigue.

Sips for Sjogren's was a water tasting event of different water from around the world. Many of the water samples were of ancient origin. The water I was a captain for is called Saint Geron. It originates from France. I tasted the water and it reminded me of carbonated water. I guess this is to be expected since it is a mineral water.

Sips was a great event for a great cause. I know I had a great time talking to everyone and helping raise funds for this cause. Thanks to Miss Kim Vaughn and all the volunteers, I know this event helped raise funds and awareness for Sjogren's Syndrome.
                                                   
My pageant Mom and Mentor Miss Kim

Saturday, May 24, 2014

A new friend sent this to me. She asked me to share it with you all. Thank you so much for sending me this My Health. http://bit.ly/1kaXYZb

Pageants

As most of you know I started doing pageants as a way to spread my lupus platform. What I did not realize at the time was how much I would be empowered from involvement in pageants. I have much more self confidence and have made some of the best friends I will ever have. I have no doubt that when it comes time to interview for a job, I will be ready due to the interviews I have been through. I am so thankful for all the opportunities that have been afforded to me.

First and foremost I have been able to speak to thousands of people about my struggle and perseverance with lupus. There have been a number of people that I have been able to witness to and encourage. I can tell you the most important thing to me has been the courage and inspiration I have received from all of the lupus patients and their families. You are all such an inspiration to me, and are the reason that I feel I must press on and fight.

I hope everyone has a great Memorial Day. Let's all take a moment Monday to remember the fallen who gave so much for our country.

xo.mckayy.xo@gmail.com